An investigation into factors which may lead to an improvement in the Quality of Life for people with a particular Long Term Condition through the use of Web 2.0 Technology
Demands for a greater degree of control and influence over personal health and healthcare (DoH 2008b. p.3) and governmental policy have resulted in the current NHS Operating Framework (DoH 2007, p.2) identifying the need for sustained focus on information management and technology in the NHS to deliver better, safer care.
In 2005, the NHS and Social Care Model – a blueprint to support organisations in improving local services for people with long-term conditions (LTC) – was published (DoH, p.9). For the delivery framework, it was noted that available options which health and social care communities could use to support people with LTC might include sets of technological tools (DoH 2008a, p.45). These could be technology that supported personalised care and choice, helped people remain independent and provided resources and support for patients to self-care and self manage.
Computer technology of the type termed Web 1.0 could be defined as the ability to connect computers and make information available, as opposed to Web 2.0, which connects people and facilitates new kinds of collaboration. Geographically displaced users can connect through social networks to others with the same chronic condition (Seeman 2008). Meanwhile, websites utilising Web 2.0 technology seek to improve the quality of users lives by offering support and information about treatment for and coping with chronic illnesses (Birnsteel 2008b, Fernandez 2008).
Current definitions concerning the integration of health information and support with Web 2.0 technology (Landro 2006, Shreeve 2008, Holt 2008, O’Grady 2008, Eysenbach 2008) are primarily concerned with approaches from a healthcare or medical perspective. They do not effectively consider how this might work from the viewpoint of the patient and also fail to consider how patients could already be using Web 2.0 technology or might want to adapt it in the future. There is a need to design a patient centered framework, encapsulating the use of Web 2.0 technology for people with LTC who might want to support, mitigate or improve their own quality of life. The primary research question and hypothesis are therefore:
Primary Research Question
Does Web 2.0 technology foster, hinder or have no impact on health-related quality of life (HRQOL) in people with a particular (to be specified) LTC?
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